The annual mail campaign of Ataxia Canada is launched this week. We are counting on your generosity a lot to finance the research on the ataxia. Bet on our victory! You can give: On-line by going to: https://lacaf.org/act-to-help/donate/ Or by post by writing a check in the order of Ataxia Canada C.P. 49065...

COME TO OUR RARE SHOW International Rare Disease Day Monday February 29 from 1:00 pm to 5:00 pm À l’Institut de recherches cliniques de Montréal (IRCM) 110 Pine avenue West, Montreal, H2W 1R7 Co-organized by the Regroupement québécois des maladies orphelines (Quebec Coalition of Orphan Diseases), the Institut de recherches...

Last year’s fund-raising campaign was a huge success: 12 000$ to acquire a mouse model with the gene causing Friedreich Ataxia. Thanks to your generosity, we have the mice lignage. Yes! It has the defective gene for the production of frataxin, the protein that keeps iron from accumulating in the body,...

Editorial Information, awareness, communication and action Eldorado, our association’s bulletin has been around for more than 40 years. It is a recognized paper publication which is filed at the Bibliothèque et Archives nationales du Québec, Bibliothèque et Archives Canada  and is also published in electronic format. It is a unique...

Our sincere thanks go to the team of «Classique Banque Nationale» of Gatineau and Gatineau business community who have donated $ 6,500 to Ataxia Canada-Claude St-Jean Foundation.

Québec media have recently covered the story of Jayden, bubble boy, the first Québec patient successfully treated using gene therapy. Jayden Duquette, five months old, was a patient of Dr. Élie Haddad, a pediatric immunologist at Ste-Justine children’s hospital in Montreal. He was born with an immune system deficiency caused...