On September, 20 Hugo Landreville, muralist graffiti artist, created a chalk picture on theme near CHUM Research Center on St-Denis Street in Montreal. The aim of the event is to raise awareness on underfunding of research on rare diseases, including hereditary ataxias.
We are currently considering a new form of funding for Professor Tremblay’s project. Our goal is to develop a mouse model for the research on Friedreich’s Ataxia. The research project will soon be published in the American crowdfundig site CONSANO. Ataxia Canada will contribute equally to the amount collected. Access to...
When armed conflicts, plagues, and cataclysms are making headlines, only few medias cares about the fate of millions of people in the world suffering of hereditary disabilities. Even so, some countries do care about it. The Institute of Genetic Diseases Imagine was inaugurated June 28 2014 in Paris, France. It...
On September 30-October 1, Canadian Health Ministers will meet to consider the options for a national plan for access to drugs for rare diseases. In July, the Canadian Organization for Rare Disorders (CORD) hosted a Summit of international and Canadian experts to deliberate the components of an “appropriate, responsible, and...
Call for nominations Deadline: September 22nd 2014 Dear members, At the November 2014 General Assembly we will have to elect four (4) members for our Association’s Board. In this message we want to invite applications from people who satisfy any of the following criteria: be active in the business sector...
NEWS RELEASE AmorChem, Université Laval and CHU de Québec collaborate on the development of a treatment for Friedreich’s Ataxia Montreal, August 4, 2014 – AmorChem, Université Laval and the CHU de Québec are happy to announce the start of a collaboration focusing on the discovery of a new treatment to...
The petition for funding of gene therapy for hereditary diseases in Quebec was proposed by Professor Jacques P. Tremblay, signed by 13 other researchers, and supported by a provincial deputy for Vanier Rivers, Patrick Huot. In the current state of government finances, researchers do not require the addition of new financial...
