Several resources are available for people with hereditary ataxia, their relatives as well as people thinking of having this disease. The following list is a summary of existing resources:

Financial assistance for people with disabilities

List of national and provincial programs

Registered disability savings plan (RDSP)

Registered disability savings plan (RDSP)

Service (assistance) dog for person with mobility impairment

Programme de remboursement des frais relatifs à l’utilisation d’un chien d’assistance à la motricité (Only in French)

Psychological Support by Phone

Ms. Thérèse Botez-Marquard, clinical neuropsychologist, is ready to listen. To arrange a telephone appointment with Ms. Botez, send an email to mbt21237@yahoo.com.

Genetic Testing

Hôpital Sainte-Justine
3175, Chemin de la Côte-Sainte-Catherine, Montréal
Tél.: 514-345-4931

Genetic Services of Quebec

Montreal:
The Montreal Children’s Hospital
Medical Genetics: 514-412-4400 ext. 22321
Prenatal Diagnostic Program: 514-412-4432

Ste-Justine Hospital – Medical Genetics: 514-345-4727

Montreal Jewish General Hospital
Prenatal Diagnostic Service: 514-340-8222 ext. 3428

Procrea Clinics (private clinic) – Genetic counseling: 514-345-8535

Quebec City:
University Hospital of Quebec
Department of Genetic Medicine: 418-656-4141 ext. 48114

Chicoutimi:
Sagamie Hospital Center
Genetic counseling service: 418-541-1234 ext. 2153

Sherbrooke:
Sherbrooke University Hospital Center
Medical Genetics Service: 819-564-5393

Genetic Services of Ontario
Childrens hospital of eastern ontario  ( CHEO )  Ottawa- gatineau Area
Genetics Clincic FAX referal to: 613-738-4822

https://www.cheo.on.ca/en/clinics-services-programs/genetics-program.aspx

Path to care

In Canada, in most provinces, when you start noticing symptoms of ataxia, your family doctor will refer you to a specialist, such as a neurologist or a geneticist, to better identify the symptoms and give you an official diagnosis. Once you are diagnosed, you can find everything else at your local hospital.

 

Alberta

Find health care facilities (different types of doctors, PT, OT, ext.) here https://www.albertahealthservices.ca/findhealth/default.aspx?source=mha

https://www.alberta.ca/disability-supports.aspx also has home care here

Home adaptations https://www.alberta.ca/residential-access-modification-program.aspx https://www.alberta.ca/assets/documents/ramp-guidelines-criteria.pdf

For additional resources in Alberta (services, programs and such) visit Alberta health services https://www.albertahealthservices.ca. You can also visit the ministry of health’s website https://www.alberta.ca/health.aspx and if you need assistance or information immediately, call Healthlink Alberta at 1-866-408-5465.

British Colombia

Home care https://www2.gov.bc.ca/gov/content/health/accessing-health-care/home-community-care https://www2.gov.bc.ca/gov/content/health/accessing-health-care/home-community-care/care-options-and-cost

Services:  https://www.workbc.ca/Resources-for/People-with-Disabilities.aspx

https://www2.gov.bc.ca/gov/content/family-social-supports/services-for-people-with-disabilities/disability-assistance

https://www2.gov.bc.ca/gov/content/family-social-supports/services-for-people-with-disabilities/supports-services (everything, job, finance, education, …)

For additional resources in British Columbia (services, programs and such) visit your local British Columbia health authority https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/health-authorities/regional-health-authorities or the ministry of health https://www2.gov.bc.ca/gov/content/governments/organizational-structure/ministries-organizations/ministries/health. You can call Healthlink British Columbia at 811.

Manitoba

If you need a doctor, you can find one here https://www.gov.mb.ca/health/familydoctorfinder/

You need to register to the RHA (regional health authority) where you reside.
–          Winnipeg Regional Health Authority
–          Southern Health
–          Prairie Mountain Health
–          Interlake-Eastern
–          Northern

If you want to purchase extra health coverage you can go to
https://www.sbis.ca/manitoba-health-insurance.html

Home adaptations – 15% on annual taxes, benefits may cover some
with a prescription from your doctor…

Home care services – Here’s a pretty basic guide
https://www.gov.mb.ca/health/homecare/guide.pdf Depends on the RHA
you are in. Most likely there’s an intake line

You need a referral to visit all health specialists. If you do not have a referral for physical therapy. The costs will be out of pocket or covered by private insurance.

Health services provided https://www.gov.mb.ca/health/mhsip/index.html#Q5

For additional resources in Manitoba (services, programs and such) visit your regional health authority https://www.gov.mb.ca/health/rha/t. You can also visit the ministry of health’s website https://www.gov.mb.ca/health/ and if you need assistance or information immediately, call Manitoba health links at 1-888-709-2929.

New-Brunswick

Everything is on this page https://www2.gnb.ca/content/gnb/en/departments/social_development/persons_disabilities.html (equipment, home adaptation, homecare and such) equipment is loaned.

For additional resources in New-Brunswick (services, programs and such) visit your regional health authorities https://www.gnb.ca/0051/regions/index-e.asp.. You can also visit the ministry of health’s website  https://www2.gnb.ca/content/gnb/en/departments/health.html and if you need assistance or information immediately, call Tele-Care at 811.

Nova Scotia

Home adaptation https://housing.novascotia.ca/programs/housing-programs-persons-disabilities/access-home-program. For anything else https://novascotia.ca/coms/disabilities/index.html, there is home care and such. In hospital physiotherapy, OT, psychology, … http://www.cdha.nshealth.ca/programs-services, if not, you can go to private PT, OT, psych…. clinic.

For additional resources in Nova Scotia (services, programs and such) visit your health authority https://novascotia.ca/dhw/about/nova-scotia-health-authority.asp. You can also visit the ministry of health’s website https://novascotia.ca/DHW/ and if you need assistance or information immediately, call Nova Scotia Telecare service at 811.

Ontario

https://www.ontario.ca/page/people-disabilities  Ontario support for disability

Ontario: Home and vehicle adaptation https://www.marchofdimes.ca/EN/programs/hvmp/Documents/MODC_HVMP_Brochure_Bilingual_2018.pdf

Your local LHIN can guide you in the right direction for other services in your area such as home care, rehabilitation, etc…  http://www.lhins.on.ca

For additional resources in Ontario (services, programs and such) visit special needs ON document. You can also visit the ministry of health’s website  http://www.health.gov.on.ca and if you need assistance or information immediately, call Telehealth Ontario at 811.

 

Quebec

For support you can contact the OPHQ https://www.ophq.gouv.qc.ca/loffice/qui-sommes-nous.html?L=

For additional resources in Quebec (services, programs and such) visit your local CLSC https://www.indexsante.ca/clsc/. You can also visit the ministry of health’s website http://www.ramq.gouv.qc.ca/fr/Pages/accueil.aspx and if you need assistance or information immediately, call Info-Santé at 811.

CR by region:

  1. Bas Saint-Laurent

355, boulevard Saint-Germain
Rimouski (Québec) G5L 3N2

 

  1. Saguenay Lac Saint-Jean

930, rue Jacques-Cartier Est, 4e étage
Saguenay (Québec) G7H 7K9

 

  1. Capitale Nationale

2915, avenue du Bourg-Royal
Québec (Québec) G1C 3S2

  1. Mauricie et Centre du Québec

858, terrasse Turcotte
Trois-Rivières (Québec) G9A 5C5

  1. Estrie

375, rue Argyll
Sherbrooke (Québec) J1J 3H5

  1. Montréal

5414, boulevard de l’Assomption
Montréal (Québec) H1T 2M4

160, avenue Stillview
Pointe-Claire (Québec) H9R 2Y2

3755, chemin de la Côte-Sainte-Catherine, bureau B-119, suite B-119
Montréal (Québec) H3T 1E2

  • CIUSSS DU CENTRE-SUD-DE-L’ÎLE-DE-MONTRÉAL 

1560, rue Sherbrooke Est
Montréal (Québec) H2L 4M1

555, boulevard Gouin Ouest
Montréal (Québec) H3L 1K5

  1. Outaouais

80, avenue Gatineau
Gatineau (Québec) J8T 4J3

  1. Abitibi-Témiscamingue

1, 9e Rue
Rouyn-Noranda (Québec) J9X 2A9

  1. Côte-Nord

835, boulevard Jolliet
Baie-Comeau (Québec) G5C 1P5

  1. Gaspésie-Îles-de-la-Madeleine

215, boulevard de York Ouest
Gaspé (Québec) G4X 2W2

430, chemin Principal
Les Îles-de-la-Madeleine (Québec) G4T 1R9

  1. Chaudière-Appalaches

363, route Cameron
Sainte-Marie (Québec) G6E 3E2

  1. Laval

1755, boulevard René-Laennec
Laval (Québec) H7M 3L9

  1. Lanaudière

260, rue Lavaltrie Sud
Joliette (Québec) J6E 5X7

  1. Laurentides

290, rue De Montigny
Saint-Jérôme (Québec) J7Z 5T3

  1. Montérégie

3120, boulevard Taschereau
Longueuil (Québec) J4V 2H1

2750, boulevard Laframboise
Saint-Hyacinthe (Québec) J2S 4Y8

200, boulevard Brisebois
Châteauguay (Québec) J6K 4W8

Saskatchewan

Saskatchewan: OT, PT and such facilities and home care can be located here https://www.saskhealthauthority.ca/Services-Locations/Pages/Home.aspx (free clinics and there are also clinics that aren’t covered)

Home adaptation https://www.saskatchewan.ca/residents/housing-and-renting/home-repairs-and-renovations/adapt-a-home-for-a-person-with-a-disability

Pay for your own care https://www.saskatchewan.ca/residents/health/accessing-health-care-services/care-at-home-and-outside-the-hospital/individualized-funding-for-home-care

SAIL (assistance for independent living home end out e.g. wheelchair and such) https://www.saskatchewan.ca/residents/health/accessing-health-care-services/health-services-for-people-with-disabilities/sail (need referral)

For additional resources in Saskatchewan (services, programs and such) visit your regional health authority https://www.saskhealthauthority.ca/Services-Locations/HealthLine/. You can also visit the ministry of health’s website  https://www.saskhealthauthority.ca/Services-Locations/HealthLine/ and if you need assistance or information immediately, call Saskatchewan Healthline at 811.

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