2025-Projects focusing on Friedreich’s ataxia in partnership with MDC

Thanks to yous upport and our partnership with Muscular Dystrophy Canada, we have funded two projects focused on Friedreich Ataxia (FA) this year ! We are thrilled to support clinical and translational research projects that focus on managing symptoms, healthcare assessments, understanding diagnosis and disease progression, enhancing care, discovering new...

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New Gene Therapy Study in Friedreich’s Ataxia (FA) Sponsored by LEXEO Therapeutics, Inc

The study is being conducted with multiple sites in the United States and Canada seeking to recruit approximately 9 participants aged 18-40 with a diagnosis of FA-associated cardiomyopathy. The study will be conducted by Dr. Antoine Duquette at the CHUM in Montreal. The choice of Montreal as a site reflects...

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A conversation with the women and men involved in our foundation: Sandy Sadler

Today we introduce you to Sandy Sadler, administrator.   AC: Can you outline your professional background?   SS: My professional background is quite atypical, but it has always affected, directly or indirectly, the field of health, training, and project management. AC: Tell us about your involvement with Ataxia Canada.  ...

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