Thanks to yous upport and our partnership with Muscular Dystrophy Canada, we have funded two projects focused on Friedreich Ataxia (FA) this year ! We are thrilled to support clinical and translational research projects that focus on managing symptoms, healthcare assessments, understanding diagnosis and disease progression, enhancing care, discovering new...
The study is being conducted with multiple sites in the United States and Canada seeking to recruit approximately 9 participants aged 18-40 with a diagnosis of FA-associated cardiomyopathy. The study will be conducted by Dr. Antoine Duquette at the CHUM in Montreal. The choice of Montreal as a site reflects...
CIHR’s Institute of Genetics is planning a workshop to bring together patients living in Canada to help ensure patient and caregiver voices are heard and guide our future work. We will discuss best practices in patient engagement in genetics research, focusing on equity, diversity, and inclusion. We are looking for...
Hello friends! The last time, I told you how Friedreich’s ataxia sneakily took up residence in my body. But oh, how I did not let him take my life. My teenage years passed (without an existential crisis…I want to clarify that) and then I grew up (but not that much…I’m...
Today we introduce you to Sandy Sadler, administrator. AC: Can you outline your professional background? SS: My professional background is quite atypical, but it has always affected, directly or indirectly, the field of health, training, and project management. AC: Tell us about your involvement with Ataxia Canada. ...
Project title: The perspective of people who have recessive ataxia in assessing the impact of the disease: development of a self-reported assessment tool Responsible doctoral student: Marjolaine Tremblay, SW, Ph.D.(c) Supervision: Cynthia Gagnon, OT, Ph.D; Bernard Brais, MD, Ph.D. You are invited to participate in a research project to develop...
NOTICE OF VACANCIES TO THE ATAXIA CANADA BOARD OF DIRECTORS Posted on: 2021-10-12 – Posted by: Ataxia Canada – Category: publications – Deadline: November 12, 2021 Dear Members, At the next annual general assembly on December 5th 2021, we will renew and/or elect members to the Board of Directors. We...