2024 metro vancouver ataxia walk

Join us for an unforgettable day dedicated to making a lasting impact. On September 7th , we’re gathering at Central Park in Burnaby to raise crucial funds for those affected by ataxia A Day of Impact, A Day to come together For a few years now, the metro Vancouver Ataxia...

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10km of hope

Together, Manon, Trine and I share the hope of a treatment for present and future generations! Although we have no doubts about the research in progress, our mission for the moment is to make family, friends and colleagues aware of the rare Friedreich Ataxia’s disease.

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Ataxia Challenge 2024

The ATAXIA CHALLENGE will take place on Saturday, August 18th, 2024 in Chambly, at the Parc des Ateliers in collaboration with Parks Canada. It is an opportunity to do your part and spend a day with people and families who are impacted with ataxia . Because moving together is to advance...

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CRC-SCA Natural History Study Canadian Information Panel

Have you ever wondered what it is like to participate in an ataxia natural history study? This type of research study collects data about how specific types of ataxia progress over time. Come learn about the CRC-SCA Natural History Study in Canada! This panel will feature a current study participant...

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ANNUAL GENERAL ASSEMBLY 2023

Dear members, You are cordially invited to the annual general meeting of Ataxie Canada-Fondation Claude St-Jean, which will be held on Sunday, December 3, 2023 by video conference. In addition to being the governing body, this meeting is an opportunity for you to learn about the financial results of the...

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Dear members,You are cordially invited to the annual general assembly of the members of Ataxia Canada-Claude St-Jean Foundation. The meeting will be held virtually on December 4th , 2022 at 1PM.This assembly will give you the opportunity to exercise your vote, inform yourself of our financial statements and our ongoing...

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