Hi reader! So, how are you doing this week? I buried the hatchet with my Ataxia. I find it hard to imagine that anyone could have pity on me; I know how to take advantage of the little that I have. I am as happy as anyone, or more, after...

Dear reader! So, what’s new these days? For my part, I’m waiting for news from my editor, patiently, about the publication of the manuscript that I sent him some time ago! If you are nice, maybe I’ll talked about this new in my next blog. In the meantime, I’m going...

Hello ! Today, I will describe one of the symptoms of AF – the worst one if you want my opinion! – with which I am familiar, spasticity, and I will tell you how I handle it personally. My advice will therefore not be the word of the Gospel to...

Where to begin, where to begin… My name is Gabrielle  and  I was diagnosed with Friedreich’s ataxia at 13 and I am now 24. I have participated in quite a few clinical trials since my diagnosis, of freewill, because I want to help research in any way I can.  I...

Hello dear reader! How is it going?? For me, I have been better … Nathan, my nephew of two and a half years, brought home a stomach flu from daycare.  I live in an intergenerational house with my mother, my brother and his little family. My mother had a more...

Hi friends! Once again, I am moved by the nice welcome you give to this blog and I really want to have the time to answer you all … Without being able to do that, I will try to direct my words towards answering everyone. I hope that will be...

Dear reader! Thank you for your warm welcome of my first article I, really, really appreciate it! I can not personally answer all your comments, but I will try to answer some of your questions through my next few blogs!! In this sense, ready for a second round and, above...