Recruitment of pediatric patients – natural history study

The Collaborative clinical research network on Friedreich’s ataxia from Montreal is now seeking the participation of a pediatric patient with a diagnosis of Freidreich’s ataxia in order to join the study of natural history!   This international network brings together 13 sites working together to advance the treatment and clinical...

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Friedreich’s Ataxia News present a new study on a vibration device that could help movement coordination for ataxic persons

Resume from the Friedreich’s Ataxia News article, Vibration Device, Equistasi, Seen to Aid Movement in Ataxia Patients in Small Study  “The study, “A Wearable Proprioceptive Stabilizer For Rehabilitation Of Limb And Gait Ataxia In Hereditary Cerebellar Ataxias: A Pilot Open-Labeled Study,” was published in the journal Neurological Sciences. Equistasi is...

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Santhera’s MICONOS Trial with Catena in Friedreich’s Ataxia Misses Primary Endpoint

Press Release Liestal, Switzerland, May 20, 2010 – Santhera Pharmaceuticals (SIX: SANN) announced today that its MICONOS Phase III study evaluating Catena®/Sovrima® for the treatment of Friedreich’s Ataxia missed its primary endpoint. Trends towards improvement in the key neurological endpoint were however identified by a meta-analysis of all Santhera’s Phase...

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