The study is being conducted with multiple sites in the United States and Canada seeking to recruit approximately 9 participants aged 18-40 with a diagnosis of FA-associated cardiomyopathy. The study will be conducted by Dr. Antoine Duquette at the CHUM in Montreal. The choice of Montreal as a site reflects...
CIHR’s Institute of Genetics is planning a workshop to bring together patients living in Canada to help ensure patient and caregiver voices are heard and guide our future work. We will discuss best practices in patient engagement in genetics research, focusing on equity, diversity, and inclusion. We are looking for...
The National Ataxia Foundation today announced that the Centre hospitalier de l’Université de Montréal (CHUM) will be the first international clinical site to join the Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA). The CRC-SCA is a group of clinical research sites across the United States actively enrolling...
Hello friends! The last time, I told you how Friedreich’s ataxia sneakily took up residence in my body. But oh, how I did not let him take my life. My teenage years passed (without an existential crisis…I want to clarify that) and then I grew up (but not that much…I’m...
A conversation with the women and men involved in our foundation. Today we introduce you to Sean Ramsden, Director of Portfolio Services at Thermo Fisher Scientific. AC: Can you describe your professional background? SR : I’ve spent the majority of my career in pharmaceutical manufacturing. My current employer, Thermo Fisher...
NOTICE OF VACANCIES TO THE ATAXIA CANADA BOARD OF DIRECTORS Posted on: 2021-10-12 – Posted by: Ataxia Canada – Category: publications – Deadline: November 12, 2021 Dear Members, At the next annual general assembly on December 5th 2021, we will renew and/or elect members to the Board of Directors. We...
A conversation with the women and men involved in our foundation. Today we introduce you to Viveka Parameswaran, B.Eng, MS, PMP, CSM AC: Can you describe your professional background? Viveka : I’m a mechatronics engineer by education with specialization in robotics and automation. I have worked as a project manager...