Despite the situation of COVID-19, We still wanted to honor our commitment and did  a draw for the travel lottery and broadcast everything  via a FACEBOOK LIVE broadcast… Thank you for your participation! https://www.facebook.com/ataxie.canada/ I suggest you  ’follow’ ’and like’ our page! Congratulations to our winners for the prizes of...

Hello everyone! I know, its been a few months away, it’s shameful … But hey, my book is now launched, published – it can be ordered in all bookstores in Quebec and, if you live in another country, write me at manu.poirier.stgeorges@gmail.com if you want.  The madness of the Montreal...

My name is Erica.  I have Friedreich’s Ataxia but that is not my only defining quality.  I am also married, thirty-one, and a mother to a five-year-old girl, four-year-old boy and one-year-old boy.  The path I have chosen in life is hard, but it is also rewarding.  I like to...

The Collaborative clinical research network on Friedreich’s ataxia from Montreal is now seeking the participation of a pediatric patient with a diagnosis of Freidreich’s ataxia in order to join the study of natural history!   This international network brings together 13 sites working together to advance the treatment and clinical...

Late-onset hereditary dominant episodic ataxia in French Canadians Dr David Pellerin 1, Dr. Mathilde Renaud 2, Mrs. Karine Choquet 1, Prof. Martine Tétreault 3, Mrs. Sylvie Provost 3, Mrs. Marie-Josée Dicaire 1, Dr Roberta La Piana 1, Dr Rami Massie 1, Dr Colin Chalk 1, Dr. Anne-Louise Lafontaine 1, Prof. Marie-Pierre...

  Gene editing of human hematopoietic stem and progenitor cells for Friedreich’s ataxia using CRISPR/Cas9 technology Dr. Celine Rocca 1, Ms. Shi Yanmeng 1, Mr. Jay Sharma 1, Dr. Prashant Mali 1, Dr. Stephanie Cherqui 1 University of California, San Diego Our goal is now to develop an autologous HSPC...

Friedreich Ataxia Collaborative Clinical Research Network and Natural History Research Project We want  to inform you that Dr. Antoine Duquette, a neurologist at the CHUM, and his research team will now be responsible for a site in Montreal that integrates the Collaborative Research Network in Friedreich Ataxia (CCRN in FA)...