Where to begin, where to begin… My name is Gabrielle  and  I was diagnosed with Friedreich’s ataxia at 13 and I am now 24. I have participated in quite a few clinical trials since my diagnosis, of freewill, because I want to help research in any way I can.  I...

Hello dear reader! How is it going?? For me, I have been better … Nathan, my nephew of two and a half years, brought home a stomach flu from daycare.  I live in an intergenerational house with my mother, my brother and his little family. My mother had a more...

Hi friends! Once again, I am moved by the nice welcome you give to this blog and I really want to have the time to answer you all … Without being able to do that, I will try to direct my words towards answering everyone. I hope that will be...

Dear reader! Thank you for your warm welcome of my first article I, really, really appreciate it! I can not personally answer all your comments, but I will try to answer some of your questions through my next few blogs!! In this sense, ready for a second round and, above...

Useful links for tax time! We took some time to prepare reference links for the tax period. There are changes every year on tax rules and it is important for you to check if this can affect you! A tax credit is used to reduce the tax payable by the...

Hello dear reader! I was approached by the Ataxia Canada Foundation  to write a blog about my life with the disease. A blog that I will simply call Ataxia and I where I will tell my adventures with this unwanted and invasive condition, Friedreich’s Ataxia – or FA, a serious...

Neurocrine Biosciences and Voyager Therapeutic announced the formation of a strategic collaboration focused on the development and commercialization of Voyager’s gene therapy programs, VY-AADC for Parkinson’s disease and VY-FXN01 for Friedreich’s ataxia, as well as rights to two programs to be determined. This collaboration combines Neurocrine Biosciences’ expertise in neuroscience,...