Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and by National Alliances and Patient Organisations at the national level. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...

In September 2015, for the seventh year, Ataxia Canada and its friends organize the WALK TO FIGHT FAMILIAL ATAXIAS, to mark the International Ataxia Awareness Day. The walks will be held in several cities across Canada. We invite all concerned people – ataxics, relatives, friends, colleagues, health care professionals, supporters...