Friedreich Ataxia is due to an expansion in the number of triplets of nucleotides (GAA) in the gene sequence which codes for the production of frataxin protein. In a healthy person there are 8-34 GAA repeats (GAA-GAA-GAA-GAA-GAA ……). However, for most patients, there are several hundreds GAA repeats. This mutation...

At the meeting, you will be brought up to date about the Association’s activities and projects. Also, the election of the board of directors the will take place; only members in good standing can vote. While registering, you can renew your next year membership for ten dollars.

September 25, International Ataxia Awareness Day (IAAD), is a very special occasion for everyone to raise awareness about ataxia and to raise funds for medical research. Raising Awareness There are many ways to spread a word about ataxia, such as through talking to our neighbors; holding an information booth in...

Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and by National Alliances and Patient Organisations at the national level. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...

In September 2015, for the seventh year, Ataxia Canada and its friends organize the WALK TO FIGHT FAMILIAL ATAXIAS, to mark the International Ataxia Awareness Day. The walks will be held in several cities across Canada. We invite all concerned people – ataxics, relatives, friends, colleagues, health care professionals, supporters...