The story I am going to tell you today is mine and how Friedreich’s ataxia came into my life. First, what is Friedreich’s ataxia? It is an incurable degenerative disease caused by genetics that affects the neuromuscular system and coordination. It all started when I was about 10 years old....
Hello, I will start by introducing myself : Dominique Ruiz-Courcelle, 50% Québécoise , 50% Salvadorian , 24 years old, speaks French, English and Spanish, lives in Gatineau, likes traveling, cinema, traveling , series , traveling, reading, traveling, eating, traveling, seeing shows, traveling… and traveling too! Meanwhile, I live with Friedreich’s Ataxia since my diagnosis at the age of 13. I say that I live in a shared apartment because I refuse...
Hello everyone! I know, its been a few months away, it’s shameful … But hey, my book is now launched, published – it can be ordered in all bookstores in Quebec and, if you live in another country, write me at manu.poirier.stgeorges@gmail.com if you want. The madness of the Montreal...
My name is Erica. I have Friedreich’s Ataxia but that is not my only defining quality. I am also married, thirty-one, and a mother to a five-year-old girl, four-year-old boy and one-year-old boy. The path I have chosen in life is hard, but it is also rewarding. I like to...
For this tenth edition that is Ataxia and I, Manu will talk to you about the importance of friendship for her – for most of the handicapped probably – but also of her need to have often her moments of loneliness! Hello! Yes, I know, it’s been too long...
Hello dear reader! First, I want to apologize for the rate of publication of articles on this blog that has recently slowed down: the correction of my future publication takes me a lot of time, sorry! Also, I want to respond to a comment from a reader: I did not...
Darrin Rein is self-employed as an IT Consultant in Kamloops British Columbia. He has a rare disease called Spinocerebellar Ataxia (SCA), check out his blog at: https://whatdawhat.blogspot.com Explaining my condition to people is not exactly on my top 10 list. But if someone ever wants to know or understand,...