Dear reader! So, what’s new these days? For my part, I’m waiting for news from my editor, patiently, about the publication of the manuscript that I sent him some time ago! If you are nice, maybe I’ll talked about this new in my next blog. In the meantime, I’m going...

Hello ! Today, I will describe one of the symptoms of AF – the worst one if you want my opinion! – with which I am familiar, spasticity, and I will tell you how I handle it personally. My advice will therefore not be the word of the Gospel to...

Where to begin, where to begin… My name is Gabrielle  and  I was diagnosed with Friedreich’s ataxia at 13 and I am now 24. I have participated in quite a few clinical trials since my diagnosis, of freewill, because I want to help research in any way I can.  I...

Hello dear reader! How is it going?? For me, I have been better … Nathan, my nephew of two and a half years, brought home a stomach flu from daycare.  I live in an intergenerational house with my mother, my brother and his little family. My mother had a more...

Hi friends! Once again, I am moved by the nice welcome you give to this blog and I really want to have the time to answer you all … Without being able to do that, I will try to direct my words towards answering everyone. I hope that will be...

Dear reader! Thank you for your warm welcome of my first article I, really, really appreciate it! I can not personally answer all your comments, but I will try to answer some of your questions through my next few blogs!! In this sense, ready for a second round and, above...

Hello dear reader! I was approached by the Ataxia Canada Foundation  to write a blog about my life with the disease. A blog that I will simply call Ataxia and I where I will tell my adventures with this unwanted and invasive condition, Friedreich’s Ataxia – or FA, a serious...