On September 30-October 1, Canadian Health Ministers will meet to consider the options for a national plan for access to drugs for rare diseases. In July, the Canadian Organization for Rare Disorders (CORD) hosted a Summit of international and Canadian experts to deliberate the components of an “appropriate, responsible, and...

The CORD needs your help to get the Orphan Drug Regulatory Framework approved now. We quote its letter bellow. “Dear friend of CORD, As you know, we’ve been working hard on the Orphan Drug Regulatory Framework and we’re very close. Now we only need you to take two more steps...