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  1. Ataxia Canada
  2. News
  3. Petition

All Posts For - Petition

Petition for funding gene therapy for hereditary diseases

2014-07-31 PUBLICATIONS Gene therapy ENG pll_53da5be75932a No comments yet

The petition for funding of gene therapy for hereditary diseases in Quebec was proposed by Professor Jacques P. Tremblay, signed by 13 other researchers, and supported by a provincial deputy for Vanier Rivers, Patrick Huot. In the current state of government finances, researchers do not require the addition of new financial...

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Petition: Approve the Orphan Drug Regulatory Framework

2014-06-18 PUBLICATIONS Petition ENG pll_53a1f2285e582 No comments yet

The CORD needs your help to get the Orphan Drug Regulatory Framework approved now. We quote its letter bellow. “Dear friend of CORD, As you know, we’ve been working hard on the Orphan Drug Regulatory Framework and we’re very close. Now we only need you to take two more steps...

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Petition: The Need for an International Consortium for Gene and Cell Therapy

2014-06-18 PUBLICATIONS Gene therapy ENG pll_53a1efdcf2e08 No comments yet

International Consortium for Gene and Cell Therapy … we have a societal obligation to the rare-disease community to collaborate and build the infrastructure to meet it. With an international consortium in place, it is more likely that therapies will be established that help patients not only in the developed world...

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Recent Posts

  • 2025-Projects focusing on Friedreich’s ataxia in partnership with MDC 2025-05-16
  • Recruitment SCA2 – Arrowhead pharmaceuticals 2025-04-25
  • My story with Friedreich’s Ataxia (4 of 4) 2025-01-29
  • Finalization of the Project: Creation of an Open Scientific Repository of Stem Cells Derived from Individuals with ARCA1-type Ataxia 2024-06-17
  • Today, we present Sébastien Huynh 2023-11-22
  • NOTICE OF VACANCIES TO THE ATAXIA CANADA BOARD OF DIRECTORS 2023-10-18
  • New Gene Therapy Study in Friedreich’s Ataxia (FA) Sponsored by LEXEO Therapeutics, Inc 2023-08-08

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The mission of Ataxia Canada, founded in 1972, is to improve the well-being of people with familial ataxia and support research

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