The National Ataxia Foundation today announced that the Centre hospitalier de l’Université de Montréal (CHUM) will be the first international clinical site to join the Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA). The CRC-SCA is a group of clinical research sites across the United States actively enrolling...
Dear Members, At the next annual general assembly on December 4th 2022, we will renew and/or elect members to the Board of Directors. We are seeking to solicit nominations of bilingual candidates that satisfy some of the following criteria: -Be involved or experienced in a business or nonprofit organization (NPO);...
Hello friends! The last time, I told you how Friedreich’s ataxia sneakily took up residence in my body. But oh, how I did not let him take my life. My teenage years passed (without an existential crisis…I want to clarify that) and then I grew up (but not that much…I’m...
Today we introduce you to Sandy Sadler, administrator. AC: Can you outline your professional background? SS: My professional background is quite atypical, but it has always affected, directly or indirectly, the field of health, training, and project management. AC: Tell us about your involvement with Ataxia Canada. ...
Project title: The perspective of people who have recessive ataxia in assessing the impact of the disease: development of a self-reported assessment tool Responsible doctoral student: Marjolaine Tremblay, SW, Ph.D.(c) Supervision: Cynthia Gagnon, OT, Ph.D; Bernard Brais, MD, Ph.D. You are invited to participate in a research project to develop...
A conversation with the women and men involved in our foundation. Today we introduce you to Sean Ramsden, Director of Portfolio Services at Thermo Fisher Scientific. AC: Can you describe your professional background? SR : I’ve spent the majority of my career in pharmaceutical manufacturing. My current employer, Thermo Fisher...
NOTICE OF VACANCIES TO THE ATAXIA CANADA BOARD OF DIRECTORS Posted on: 2021-10-12 – Posted by: Ataxia Canada – Category: publications – Deadline: November 12, 2021 Dear Members, At the next annual general assembly on December 5th 2021, we will renew and/or elect members to the Board of Directors. We...