U.S. Food & Drug Administration Approves Reata Pharmaceuticals’ SKYCLARYS™ (Omaveloxolone) for the Treatment of Adults and Adolescents Aged 16 Years and Older with FA Montreal,QC ., February 28, 2023 – This week marks the approval of the first medication to treat Friedreich’s Ataxia (FA), a milestone for the FA...
CIHR’s Institute of Genetics is planning a workshop to bring together patients living in Canada to help ensure patient and caregiver voices are heard and guide our future work. We will discuss best practices in patient engagement in genetics research, focusing on equity, diversity, and inclusion. We are looking for...
The National Ataxia Foundation today announced that the Centre hospitalier de l’Université de Montréal (CHUM) will be the first international clinical site to join the Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA). The CRC-SCA is a group of clinical research sites across the United States actively enrolling...
Dear Members, At the next annual general assembly on December 4th 2022, we will renew and/or elect members to the Board of Directors. We are seeking to solicit nominations of bilingual candidates that satisfy some of the following criteria: -Be involved or experienced in a business or nonprofit organization (NPO);...
Hello friends! The last time, I told you how Friedreich’s ataxia sneakily took up residence in my body. But oh, how I did not let him take my life. My teenage years passed (without an existential crisis…I want to clarify that) and then I grew up (but not that much…I’m...
Today we introduce you to Sandy Sadler, administrator. AC: Can you outline your professional background? SS: My professional background is quite atypical, but it has always affected, directly or indirectly, the field of health, training, and project management. AC: Tell us about your involvement with Ataxia Canada. ...
Project title: The perspective of people who have recessive ataxia in assessing the impact of the disease: development of a self-reported assessment tool Responsible doctoral student: Marjolaine Tremblay, SW, Ph.D.(c) Supervision: Cynthia Gagnon, OT, Ph.D; Bernard Brais, MD, Ph.D. You are invited to participate in a research project to develop...