Posted on: 2023-10-18– Posted by: Ataxia Canada – Category: publications Deadline: November 18 2023 Dear Members, At the next annual general assembly on December 3rd 2023, we will renew and/or elect members to the Board of Directors. We are seeking to solicit nominations of bilingual candidates that satisfy some of...
The study is being conducted with multiple sites in the United States and Canada seeking to recruit approximately 9 participants aged 18-40 with a diagnosis of FA-associated cardiomyopathy. The study will be conducted by Dr. Antoine Duquette at the CHUM in Montreal. The choice of Montreal as a site reflects...
U.S. Food & Drug Administration Approves Reata Pharmaceuticals’ SKYCLARYS™ (Omaveloxolone) for the Treatment of Adults and Adolescents Aged 16 Years and Older with FA Montreal,QC ., February 28, 2023 – This week marks the approval of the first medication to treat Friedreich’s Ataxia (FA), a milestone for the FA...
CIHR’s Institute of Genetics is planning a workshop to bring together patients living in Canada to help ensure patient and caregiver voices are heard and guide our future work. We will discuss best practices in patient engagement in genetics research, focusing on equity, diversity, and inclusion. We are looking for...
The National Ataxia Foundation today announced that the Centre hospitalier de l’Université de Montréal (CHUM) will be the first international clinical site to join the Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA). The CRC-SCA is a group of clinical research sites across the United States actively enrolling...
Dear Members, At the next annual general assembly on December 4th 2022, we will renew and/or elect members to the Board of Directors. We are seeking to solicit nominations of bilingual candidates that satisfy some of the following criteria: -Be involved or experienced in a business or nonprofit organization (NPO);...
Today we introduce you to Sandy Sadler, administrator. AC: Can you outline your professional background? SS: My professional background is quite atypical, but it has always affected, directly or indirectly, the field of health, training, and project management. AC: Tell us about your involvement with Ataxia Canada. ...