Deadline: September 25th 2015 Dear members, At the November 2015 General Assembly we will have to elect three (3) members for our Association’s Executive Board. In this message we want to invite applications from people who satisfy any of the following criteria: be active in the business sector or in the community, be available, have...
In a Radio-Canada radio interview on January 19, 1974, Dr. André Barbeau told Fernand Séguin how he viewed research in health: “The problem is the total level of support for research. Let’s call a spade a spade: “health” is in fact “the health industry.” It accounts for two billion dollars...
A team of 12 people left Montreal this afternoon to conquer the Machu Pichu in Peru. Four of these people are suffering from Friedreich’s ataxia and the other eight are close supporters. The common and fundamental objective (in addition to climb this mountain) is to raise awareness of ataxia and...
Editorial Spring is here! We are full of projects for our various events: the Machu Picchu challenge, the Défi Ataxie cycling event , the various regional editions of the Walk to Fight Familial Ataxias, etc. Through these activities, we hope to reach a large number of participants across Quebec and...
Do you have a Facebook profile or a Twitter account and do you spend a certain number of hours on it each week? On there you share your news, your photos, your moods with others (loved ones, colleagues, true friends and Facebook friends.) Did you know that your social...
Publication of Jacques P. Tremblay’s team. AAV9 frataxin Friedreich ataxia An AAV9 coding for frataxin clearly improved the symptoms and prolonged the life of Friedreich ataxia mouse models
28 February 2015 marks the eighth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from more than 80 countries and regions worldwide are planning awareness-raising activities around the slogan Day-by-day, hand-in-hand.