COME TO OUR RARE SHOW

International Rare Disease Day

Monday February 29 from 1:00 pm to 5:00 pm

À l’Institut de recherches cliniques de Montréal (IRCM)

110 Pine avenue West, Montreal, H2W 1R7

Co-organized by the Regroupement québécois des maladies orphelines (Quebec Coalition of Orphan Diseases), the Institut de recherches cliniques de Montréal and the Rare Disease Foundation.

As in a scientific meeting where researchers and students present their research on a poster, during the Rare Show, people who live with a rare disease or their caregivers will present their rare disease on a poster. Rare disease patient organizations will also be present and some researchers/students of the IRCM will present their research projects on a rare disease.

There will also be the announcement of the partnership between the RQMO and IRCM, scientific presentations, and testimonials: and the list of patient organizations and individual rare diseases that will be presented.

The Rare Disease Foundation will present its Parent2Parent Resource Network (support group for parents who have children with a rare disease)

Source:  inforiel of RQMO February 2016