On September 30-October 1, Canadian Health Ministers will meet to consider the options for a national plan for access to drugs for rare diseases. In July, the Canadian Organization for Rare Disorders (CORD) hosted a Summit of international and Canadian experts to deliberate the components of an “appropriate, responsible, and sustainable” plan. CORD will be submitting recommendations to the Health Ministers based on the Summit outcomes but, in advance, we are seeking broader stakeholder opinion.
CORD invites you to answer a short survey by Friday August 29. Please take a few moments to provide your personal views and perspectives on this very important issue. There are no right or wrong answers. We are interested in your personal opinion. If you are not sure, please give the answer that is “closest” to your personal view.