Eldorado May 2015, No 30, Vol. 1

Editorial Spring is here! We are full of projects for our various events: the Machu Picchu challenge, the Défi Ataxie cycling event , the various regional editions of the Walk to Fight Familial Ataxias, etc. Through these activities, we hope to reach a large number of participants across Quebec and...

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Rare Disease Day

28 February 2015 marks the eighth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from more than 80 countries and regions worldwide are planning awareness-raising activities around the slogan Day-by-day, hand-in-hand.

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Eldorado November 2014, No 29 Vol. 2

The Relentless Work Editorial This is our second edition of the year, the first having come out in January. A lack of texts and resources is responsible for this long break. Here is some recent news I’d like to share. A few weeks ago, during the annual general meeting, a...

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GRAFFITI Project Video

On September, 20 Hugo Landreville, muralist graffiti artist, created a chalk picture on theme near CHUM Research Center on St-Denis Street in Montreal. The aim of the event is to raise awareness on underfunding of research on rare diseases, including hereditary ataxias.      

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