The Rare Show

COME TO OUR RARE SHOW International Rare Disease Day Monday February 29 from 1:00 pm to 5:00 pm À l’Institut de recherches cliniques de Montréal (IRCM) 110 Pine avenue West, Montreal, H2W 1R7 Co-organized by the Regroupement québécois des maladies orphelines (Quebec Coalition of Orphan Diseases), the Institut de recherches...

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L’Eldorado November 2015, No 30, Vol. 2

Editorial Information, awareness, communication and action Eldorado, our association’s bulletin has been around for more than 40 years. It is a recognized paper publication which is filed at the Bibliothèque et Archives nationales du Québec, Bibliothèque et Archives Canada  and is also published in electronic format. It is a unique...

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«The incredible story of little Jayden, bubble boy, the first Québec patient successfully treated using gene therapy».

Québec media have recently covered the story of Jayden, bubble boy, the first Québec patient successfully treated using gene therapy. Jayden Duquette, five months old, was a patient of Dr. Élie Haddad, a pediatric immunologist at Ste-Justine children’s hospital in Montreal. He was born with an immune system deficiency caused...

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September 25, International Ataxia Awareness Day (IAAD), is a very special occasion for everyone to raise awareness about ataxia and to raise funds for medical research.  

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