Story of an ataxia guinea pig!

Where to begin, where to begin… My name is Gabrielle  and  I was diagnosed with Friedreich’s ataxia at 13 and I am now 24. I have participated in quite a few clinical trials since my diagnosis, of freewill, because I want to help research in any way I can.  I...

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Ataxia and I: A new blog

Hello dear reader! I was approached by the Ataxia Canada Foundation  to write a blog about my life with the disease. A blog that I will simply call Ataxia and I where I will tell my adventures with this unwanted and invasive condition, Friedreich’s Ataxia – or FA, a serious...

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Gene therapy abroad

Neurocrine Biosciences and Voyager Therapeutic announced the formation of a strategic collaboration focused on the development and commercialization of Voyager’s gene therapy programs, VY-AADC for Parkinson’s disease and VY-FXN01 for Friedreich’s ataxia, as well as rights to two programs to be determined. This collaboration combines Neurocrine Biosciences’ expertise in neuroscience,...

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