Diane Roch

Over the past 15 years, Ms. Roch has worked for not for profit foundations and developed a solid expertise in philanthropy, management of foundations and fundraising. Prior to her career in philanthropy, Diane held senior management positions in marketing and communications at the Ritz Carlton Hotel, at Palais des Congrès...

Jean Luk Pellerin

President of a consulting firm specializing in strategic planning, merger and acquisition, organizational redesign, talent development and executive coaching. A graduate of Laval University's Bachelor of Industrial Relations and NTL's organizational development program.

Sebastien Huynh

Masters Degree in Environment of Bordeaux I University (France), MBA ESG Paris e (France) and graduate of HEC Montréal, title of CPA-CMA. Financial executive with more than 15 years of international experience in Financial Analysis, Corporate Finance and Strategic Planning. Socially involved in several NGOs and interested in international exchanges.

Solange Lavoie Guillemette

As a young retired person, this dynamic woman held the position of Commercial Director in the automotive field and was involved in several organizations.

André De Montigny

André De Montigny has been active as Vice-President, Business Development and member of the senior management teams of Via Rail, Téléglobe Canada, Vidéotron, CDPQ and Transat. He has realized numerous acquisitions and divestitures in Canada but mostly in Europe, Asia and Latin America. Moreover, he has been responsible for Transat’s strategic...

Melanie Lane

Melanie Lane holds a Bachelors Degree and Master’s Certificate in Healthcare Management from McGill University. A Fundraising Executive with 15 years experience in the non-profit healthcare and education sector, she has demonstrated passion for building strong annual funds, Corporate Sponsorship, program review and large-scale events

Bianca Guillemette

She works as a civil engineering technician for Services exp. in Granby since the end of her training in 1998. She is specialized in urban infrastructure and outdoor development. She carries out the drawing up of the municipal sewerage and aqueduct networks as well as the transposition in profile of...

Nicolas Théberge

Nicolas Theberge is a John Molson School of Business alumni with 15 years of sales and marketing experience. Currently living in Calgary with his wife Bri and 2 kids Sebastien and Vincent, Nicolas is the Territory Manager for ResMed, a medical technology company focused on sleep and ventilation products.

Office Team

François-Olivier Théberge

Graduate in Mechanical Engineering from École Polytechnique de Montréal. François-Olivier has a varied professional background: engineering project manager, multidisciplinary team coaching, department director and entrepreneur. He is responsible for bridging the gap between scientists, researchers and other organizations working on ataxias abroad and the Board of Directors.

Francine Lévesque


Jean Phenix

He holds a bachelor's degree in sociology from the Université de Montréal, Jean Phénix has worked as an assembler at Bombardier for more than 35 years.

Lucie Gagnon

Woman of experience and confidence, she is now grandmother of 6 grandchildren including Morgane (15 years), afflicted with Ataxia of Friedreich.

Alain Brulotte

Baccalauréat en sciences appliquées, il travaille dans une entreprise de construction comme estimateur sénior, gérant de projet, et ce depuis plus de 20 ans chez Équipe TA (Laval). 

Medical Committee