Funding the Development of a Mouse Model for the Research on Friedreich’s Ataxia

We are currently considering a new form of funding for Professor Tremblay’s project. Our goal is to develop a mouse model for the research on Friedreich’s Ataxia. The research project will soon be published in the American crowdfundig site CONSANO. Ataxia Canada will contribute equally to the amount collected. Canadians wishing...

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Survey: Canadian Plan Access to Drugs Rare Diseases

On September 30-October 1, Canadian Health Ministers will meet to consider the options for a national plan for access to drugs for rare diseases. In July, the Canadian Organization for Rare Disorders (CORD) hosted a Summit of international and Canadian experts to deliberate the components of an “appropriate, responsible, and...

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